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Etc.: Bio-IT World: The Henrietta Compromise: NIH announces HeLa data use agreement
Submitted by J.W. Bizzaro; posted on Thursday, August 08, 2013
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EXCERPT
Under the terms of the HeLa Genome Use Data Agreement, biomedical researchers who agree to abide by the terms of the agreement will be able to apply to NIH for access to the full genome sequence data from HeLa cells. Along with representatives from the medical, scientific, and bioethics communities, two representatives of the Lacks family – David Lacks Jr., Henrietta's grandson and Veronica Spencer, Henrietta's great granddaughter – will serve on NIH's newly formed, six-member working group that will review proposals for access to the HeLa full genome sequence data.
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