[Next-Generation Sequencing Book]
  • [Photo] J.W. Bizzaro • February 18, 2001
    ``Meet Daniel and Debbie Greenberg, who transformed the deaths of their son and daughter from Canavan disease into a biomedical blessing. They initiated a research program that led to the discovery of that disease's causative gene--only to learn that the university that co-sponsored the research had quickly patented the gene and made it unavailable or unaffordable to researchers who wanted to use it to help parents and patients.''

    Full story:
    http://www.scientificamerican.com/2001/0301issue/0301reviews1.html

    Reference by Slashdot.org.

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